Webinar on-demand

Improving Quality of Life for Patients with Sickle Cell Disease: University of Chicago Medicine

University of Chicago Virtual Session

Improving Quality of Life for Patients with Sickle Cell Disease & Addressing Healthcare Disparities

Sickle cell disease (SCD) is the world’s most common genetic disease, affecting approximately 100,000 people in the United States. As a group, people with SCD experience worse health outcomes compared to other diseases and have access to fewer health resources. Clinicians and Data Leaders at University of Chicago Medicine wanted to change that.

Through a data-driven, patient centered initiative, UChicago Medicine has improved the lives of thousands of patients dealing with crippling pain episodes, the most common complication of SCD, while achieving a 68% reduction in readmission rates and improved capacity and access for the health system.

Join Executive Leadership and Specialty Clinicians from UChicago in this session as they review how through actionable analytics and dedicated teamwork they:

  • Created care protocols, derived through data driven insights, in a specialty care setting to improve patient outcomes
  • Monitored the program daily/quarterly and developed new strategies for screening, medication delivery and inventory management and created new more effective staffing approaches like local patient advocates and ARNPs. After two years, UChicago saw readmissions drop from being north of 50% to below 30% - even seeing some months with rates less than 20% 
  • Opened up delivery to out of network and uninsured patients diagnosed with SCD based on proven, effective care delivery protocols
  • Are expanding the scope of the protocols to include an inpatient consults and helping to address unmet Social Determinants of Health

UChicago is better equipped to deliver the right care to the right patient when they show up in the ER, due to the data driven approach and teamwork leadership at UChicago prioritizes. Ensuring patient populations get the right access to specialty care while ensuring the ER is open to other cases means their data-driven culture has created a true win-win for reducing health inequities and improving patient lives.

About the speakers


Stephanie Chia

Executive Director of Transformative Care at UChicago Medicine

Stephanie Chia is the Executive Director of Transformative Care at UChicago Medicine. She has her B.A. in Biological Sciences from University of Chicago.

Mark Connolly TC21 Hubb Headshot

Mark Connolly

Business Intelligence Lead at UChicago Medicine

Business Intelligence Lead with a history of working in an academic hospital and clinical research laboratory. Skills include SQL, Tableau reporting and technical training. Education history includes a B.S. in Bioengineering and MEng with a concentration in Bioinformatics both from the University of Illinois at Chicago. Co-lead for the Tableau Virtual Healthcare User Group and 2021 Tableau Ambassador. Founder of The Millennial Analyst LLC, a small business focused on Tableau training and small projects in the healthcare domain.


Whitney Westphal

Business Intelligence Lead Analyst at UChicago Medicine

Whitney is a global-minded young professional using international education and experience to add value to healthcare environment.


Valerie Press

MD, Associate Professor of Medicine-Pediatrics, Executive Medical Director of Specialty Value Based Care at UChicago Medicine

Dr. Valerie Press is an Associate Professor of Medicine-Pediatrics and is the Executive Medical Director of Specialty Value-Based Care at the University of Chicago. She completed her MD and MPH (Health Management and Policy) at the University of Michigan in 2004, her Medicine-Pediatrics residency at the University of Chicago in 2008, and her Hospital Scholars Health Services Research fellowship at the U of C in 2010. She was a hospitalist for over 8 years. Currently she is a faculty preceptor in our combined Med-Peds clinic and attends on the wards. She is an R01 funded health services research focused on the use of behavioral randomized trials and implementation science research methods to develop, evaluate, and implement patient and system level interventions to improve the quality of care provided to patients with chronic diseases, with a focus on asthma and COPD. She also has a focus on medical education having completed the U of C’s MERITS program. She is the social sciences track leader for the medical school’s longitudinal Scholarship and Discovery Program, among other medical school roles.


Jeremy Racine

Director of Healthcare, Salesforce - Tableau

As Director of Healthcare at Salesforce-Tableau, Jeremy leverages his 20+ years of experience across the analytics lifecycle to evangelize its impact on healthcare. He has presented at numerous global healthcare events, authored a variety of healthcare analytics publications, and supported healthcare initiatives to address threats such as Zika, Ebola & COVID-19. As a part of Salesforce-Tableau Health Analytics Practice, he helps lead healthcare data/analytic go to market efforts, ensuring strategic initiatives and support align with healthcare market needs and the quadruple aim of health. He has significant experience collaborating across the entire healthcare eco-system and knows well the complex interdependencies between healthcare policy, programs and providers/payers/patients. He has worked with numerous government healthcare agencies, healthcare systems & insurers across the globe and continues to identify and support opportunities where innovative data/analytics/BI solutions can improve healthcare operations, access and outcomes, better manage costs, and ensure optimal experience for service providers & patients. Jeremy sits on the Scientific Steering Committee for the COVID-19 Research Database and has been a long-time participant with several industry organizations including NAHDO/APCD Council & HIMSS.

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